Here you will find comprehensive summaries of our online discussion sessions and information about upcoming discussions. These sessions are organised and brought to you by a team of experts and the Ichthyosis Support Group, all of whom give their time and share their knowledge voluntarily.
Members joined us on Zoom for 2 1 hour discussion sessions about Ear Care in Ichthyosis, held at 10.00am and 5.00pm. Independent ENT Nurse Practitioner, Jo Outhwaite, (previously from Birmingham Children’s Hospital) shared her expertise on ear care. Read more
Watch this online webinar with Professor Edel O'Toole and researcher Dr William Davies discussing ichthyosis and answering viewers questions. Read more
The dermatology team from Birmingham Children's hospital shared their expertise with ISG members and answered questions to help them manage their hair and scalp problems. Read more
Online Q & A with: Dr Mark O’Sullivan – podiatrist, working at Birmingham’s Children’s Hospital and Paediatric Clinical Nurse Specialist in Dermatology - Sheila Richards, Birmingham’s Children’s Hospital. Read more
The recording of the online Presentation and Q&A session. Read more
Mr Malhotra led the online discussion with ISG members from across the globe, sharing his expertise and answering questions concerning problems with the management of eye care in those affected by ichthyosis. Read more
An online group discussion to talk about, share experiences of and share advice for living with the psychological impact of ichthyosis. Read more
On 29th July 2022 we held an online webinar with 54 individuals and families from around the world. There was a 2 part presentation and question and answer sessions, and you can watch these here. Read more
Summary and video of online session titled Managing Treatment Resistance and Stress in Young People with Ichthyosis Read more
Ahead of a new research project some ISG members discussed their concerns about ageing with ichthyosis. Read more