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  • Research Funded By The ISG
  1. Home
  2. Research Funded By The ISG

Research Funded By The ISG

Ichthyosis Support Group Research Grant

Ichthyosis Support Group Research Grant

Information about applying for a research grant or funding from the Ichthyosis Support Group Read more

Published: 12th November, 2024

Updated: 1st May, 2026

Author: Mandy Aldwin

Early Insights from Our England-Wide Ichthyosis Study – Dr Mark Eisner

Early Insights from Our England-Wide Ichthyosis Study – Dr Mark Eisner

Early findings from an ISG-funded nationwide ichthyosis study, using data from over 57 million people in England to build the most accurate picture to date. Read more

Published: 17th March, 2026

Updated: 18th March, 2026

Author: Mandy Aldwin

An epidemiological study of people living with ichthyoses across England

An epidemiological study of people living with ichthyoses across England

The Ichthyosis Support Group have funded a team of researchers based at Newcastle University to use different techniques to understand ichthyoses from the laboratory to ‘big-data’. Read more

Published: 7th December, 2024

Updated: 1st December, 2025

Author: Mandy Aldwin

Netherton syndome research

Netherton syndome research

Gene Therapy for genetic skin disease Netherton syndrome Read more

Published: 6th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin

Bullous Congenital Ichthyosiform Erythroderma

Bullous Congenital Ichthyosiform Erythroderma

Eradication of K1/K10 in the epidermis – a model for Bullous Congenital Ichthyosiform Erythroderma (BIE/EHK) therapy Read more

Published: 6th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin

Why Ichthyosis Skin is Scaly

Why Ichthyosis Skin is Scaly

Understanding why ichthyosis skin is scaly Read more

Published: 6th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin

Young People’s Face It

Young People’s Face It

The Ichthyosis Support Group (ISG) was delighted to team up with the British Skin Foundation (BSF) to award a joint grant of £10,000 towards research into helping individuals living with ichthyosis. Read more

Published: 6th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin

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Latest

  • Nubah's Charity walk and car wash for the Ichthyosis Support Group

    I'm organising this challenge/event to raise money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition. This is the condition that a pupil in our 6th form has.

  • Faces of Ichthyosis: Paige

    Faces of Ichthyosis: Paige

    Explore Paige's journey with ichthyosis, embracing individuality and strength while overcoming life's challenges.

  • Faces of Ichthyosis: Elliot

    Faces of Ichthyosis: Elliot

    Elliot’s story highlights the resilience needed to live with ichthyosis and the challenges of daily skin care. He hopes people will look beyond his skin and better understand the impact of the condition.

  • Faces of Ichthyosis: Anthony

    Faces of Ichthyosis: Anthony

    Anthony’s story is one of determination, honesty, and quiet strength - showing that ichthyosis may shape daily life, but it doesn’t limit what’s possible.

Most read

  • Treatments Used in Ichthyosis

  • Palmoplantar Keratoderma (PPK)

  • X-linked Ichthyosis

  • Vitamin D

    Vitamin D

    Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.

  • Harlequin Ichthyosis

  • Inheritance of Ichthyosis Factsheet

  • Ichthyosis Overview

  • Eye Management in Ichthyosis

  • Udrate Cream

    We have received information about a new product similar to the discontinued Calmurid, and the following is for your information and guidance.

  • Harlequin Ichthyosis Factsheet

Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

This article explains the recent changes in how we name some inherited skin conditions. This includes conditions like the ichthyoses and palmoplantar keratodermas. Read more

Published: 3rd September, 2025

Updated: 4th October, 2025

Author: Mandy Aldwin

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