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  1. Support Our Work
  2. Fundraise for Us
  3. Fundraising Resources

Fundraising Resources

Setting up your Fundraising Page

Setting up your Fundraising Page

Thank you for choosing to fundraise for us! Here you can easily set up your Fundraising Page for your chosen challenge or fundraising event. Read more

Published: 10th June, 2014

Updated: 14th August, 2024

Author:

Paying Your Fundraising In

Paying Your Fundraising In

You are amazing! You've held your fundraiser and now want to get the cash to us. Read more

Published: 24th February, 2022

Updated: 14th April, 2023

Author: Mandy Aldwin

Tea Party/Fundraising Pack

Tea Party/Fundraising Pack

Get your fundraising pack. Either select items, or download things like a poster, sponsor form and press release. Read more

Published: 20th August, 2021

Updated: 14th April, 2023

Author: Mandy Aldwin

A-Z fundraising ideas

A-Z fundraising ideas

Looking for inspiration for how to fundraise? Here's an A-Z to help you get your thoughts flowing Read more

Published: 16th August, 2021

Updated: 14th April, 2023

Author: Mandy Aldwin

Tell us about your fundraising

Tell us about your fundraising

We'd like you to help us reach our fundraising goals. Please tell us about your fundraising so we can support you. Read more

Published: 14th August, 2021

Updated: 11th April, 2023

Author: Mandy Aldwin

A rough guide to fundraising

A rough guide to fundraising

Thank you for choosing to fundraise for us. Stuck for ideas and knowing where to start? This rough guide will help you be inspired and get creative. Read more

Published: 16th August, 2021

Updated: 5th May, 2022

Author: Mandy Aldwin

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Latest

  • Faces of Ichthyosis: Paige

    Faces of Ichthyosis: Paige

    Explore Paige's journey with ichthyosis, embracing individuality and strength while overcoming life's challenges.

  • Faces of Ichthyosis: Elliot

    Faces of Ichthyosis: Elliot

    Elliot’s story highlights the resilience needed to live with ichthyosis and the challenges of daily skin care. He hopes people will look beyond his skin and better understand the impact of the condition.

  • Faces of Ichthyosis: Anthony

    Faces of Ichthyosis: Anthony

    Anthony’s story is one of determination, honesty, and quiet strength - showing that ichthyosis may shape daily life, but it doesn’t limit what’s possible.

  • Faces of Ichthyosis: Rosemary

    Faces of Ichthyosis: Rosemary

    Rosemary’s story is raw, direct, and deeply human - reminding us that behind every visible difference is a life just as rich, complex, and worthy of connection as any other.

Most read

  • Treatments Used in Ichthyosis

  • Palmoplantar Keratoderma (PPK)

  • X-linked Ichthyosis

  • Vitamin D

    Vitamin D

    Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.

  • Harlequin Ichthyosis

  • Inheritance of Ichthyosis Factsheet

  • Ichthyosis Overview

  • Eye Management in Ichthyosis

  • Udrate Cream

    We have received information about a new product similar to the discontinued Calmurid, and the following is for your information and guidance.

  • New product - Udrate

    New product - Udrate

    Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.

Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

This article explains the recent changes in how we name some inherited skin conditions. This includes conditions like the ichthyoses and palmoplantar keratodermas. Read more

Published: 3rd September, 2025

Updated: 4th October, 2025

Author: Mandy Aldwin

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Ichthyosis Support Group, First Floor Rubra One, Mulberry Business Park, Fishponds Road, Wokingham RG41 2GY UK

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