We are aware that some patients with ichthyosis are experiencing difficulties with their GP reducing, or stopping prescriptions of emollients including bath and shower products. For some members this also extends to some silk garments.

It's important to note that deprescribing in the context of ichthyosis is not a blanket policy, but rather a nuanced approach. The decision to deprescribe should be made on a case-by-case basis, taking into account the patient's condition, the potential benefits and risks of treatment, and their preferences.

If a patient or their caregiver feels that a treatment is being unjustifiably deprescribed or reduced, it is essential that they discuss these concerns with their healthcare provider. Collaboration between healthcare providers and patients is key to ensuring optimal care.

Our Medical Advisory Board have written letters that you may print off and take to your GP asking them to prescribe the items you need to care for your ichthyosis. The guidance from NHS England is also available below. You can access these documents via the links below.

Guidance from NHS England 

Download The Letter to GP re emollient prescribing

Download The Letter to GP re emollient and silk garment prescribing

If you continue to have difficulties obtaining your prescribed skin care products via your GP please contact us either by telephone on 0800 3689621 or by email [email protected]

 

To find out more about the ISG or become a member please get in touch in one of the following ways: 

By Phone

0800 368 9621

By Email: 

[email protected]

Facebook: 

facebook.com/ichthyosissupportgroup 

Twitter: 

twitter.com/ISG_Charity